Hi everyone! I just cannot believe that we are on the cusp of Labor Working day and summer coming to a near. The previous 5 to 6 months have been a complete blur and this summer months, in specific, has flown by. There’s been hospitals (chemo, stem cell harvest, surgical treatment), clinic appointments, and driving again and forth to New York.
But, one foot in entrance of the other and 1 working day at a time, we are grateful to be heading into a new year with a powerful boy and hearts entire of hope.
Dominic had a occupied initial number of months of August…
🔍 Very first, he had a new set of scans (MRI + MIBG) furthermore an additional bone marrow biopsy. The scans continue to show illness in the course of his bones but most of the spots are “dimmer” than ahead of, and the bone marrow involvement lessened by over 50%.
So, there is even now perform to do, but there is an improvement. And! Dominic did each of the scans with out anesthesia (he has been sedated formerly because you have to lay completely however and the MIBG is around 2 hrs). He’s a rock star.
🏥 Upcoming, he experienced his very first round of immunotherapy. The antibody he’s provided targets the protein of neuroblastoma cells and considering that they ordinarily sit on nerve cells, there is substantial nerve ache accompanying the cure. The infusion is limited (45 minutes) but powerful.
There is a good deal of pre-treatment and agony administration through and following, and he would basically slumber the whole relaxation of the day afterward. But, the treatment plans are outpatient so no healthcare facility stays, and they really don’t effect counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off a further significant hurdle… radiation. He did this awake with no anesthesia as well… 2 times a working day for five days, he was strapped down utilizing a specific mask that was molded to his head and higher entire body to retain his head and neck in the specific identical posture each time (his clavicle was radiated thanks to the cluster of diseased lymph nodes that have been there, as well as the tumor bed in his stomach). An remarkable girl who operates there has the youngsters pick what they want their masks to be and then personalized paints them… Dominic chose Iron Person. There are some very distinctive persons in this entire world.
He could also select whatsoever audio he needed to be piped in each time and chose Christmas songs every single day 💕🌲 He fully rocked it and the people today working there ended up definitely phenomenal.
➡️ Next… we get to be house for a few of weeks, then it’s back to NY for an additional round of immunotherapy, a new established of scans, and an additional bone marrow biopsy.
📘 In the meantime, he started kindergarten this 7 days! He’ll be joining course just about until finally his oncologist presents him the go-forward to show up at in human being, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all started out escalating again! He’s experienced a ton of energy, has attained back all of the pounds he missing after surgery and that previous round of chemo and is normally performing genuinely, genuinely very well.
❤️ Thank you all for your ongoing prayers, it suggests so a lot to our loved ones.
In other news, I am arranging to get some emails scheduled out heading into the slide and getaway period to refresh some web-site material. So, you can look forward to me popping into your inbox much more often in the coming months 🎉